“Go with Gaucher” är ett projekt under EGA, som bjuder in unga vuxna Gaucherpatienter för möte och nätverkande sinsemellan.
Här nedan är en inbjudan till årets träff i Frankfurt 27 – 29 oktober.
Om du som patient är intresserad av att delta, så hör av dig på anmalan@morbusgaucher.se så tar vi upp ditt intresse till diskussion i styrelsen.
Dear EGA Representatives
The 3rd Go with Gaucher event is now planned to take place on the 27th – 29th October 2017 in Wiesbaden near Frankfurt, Germany. What started out as a pilot project in 2012 has now become an integral element of what the EGA aims to achieve.
As at previous events it will be a “by invitation only meeting” and it will be the responsibility of the national associations to identify your potential participant.
Once again we would like to invite young adult Gaucher patients, aged 21-30years, to participate in the Go with Gaucher event. We remind you that the Go with Gaucher program has been designed specifically with the aim of achieving two goals:-
- To enable patients to meet with peers and build support networks.
- To develop knowledge and leadership potential.
The EGA recognize that the success and outcome of the program will largely depend upon each individual participant. Candidates with a broad range of Gaucher experience, those either new or established within the national community will be equally welcome.
It has been decided by the EGA board that we wish to give the opportunity to as many young Gaucher patients as possible to meet with peers from all over the world and to have the chance to exchange information and ideas. Therefore those individuals who may have already participated in two previous Go with Gaucher events are unable to register.
This year participants should be:-
- Young patients who have participated in 1 previous meeting
- Young patients who have not previous participated
Initially there can be only one nomination from each member organization. However in the event that the meeting is not fully subscribed the EGA board will consider additional candidates from member organisations on a discretional basis.
What we ask you to do now is to consider who should participate from within your national organization. Please remember that participants must be English speaking.
In the first half of June we will provide further information about the program and practical information (i.e. how to register and travel). The EGA will cover the cost of the meeting, travel, accommodation and all meals.
In the meantime if you have any questions feel free to contact Anne-Grethe Lauridsen at
anne-grethe@eurogaucher.org
Kind regards
Sent for and on behalf of
Anne-Grethe Lauridsen and Vesna Aleksovska
European Gaucher Alliance Board Members
Chris
Chris Hilldrup
Projects & Administration Co-ordinator
European Gaucher Alliance (EGA)
8 Silver Street |Dursley |Gloucestershire |GL11 4ND |UK
Tel: 00 44 1453 549231 |Fax: 00 44 1453 549231 | jo@eurogaucher.org | www.eurogaucher.org | https://www.facebook.com/EuropeanGaucherAlliance
